Comments on: Fragile X Awareness Day 22nd July 2008

By: Used Tires

Used Tires — Sat, 20 Jun 2009 22:31:56 +0000

I have never heard of fragile x syndrome. That is of course, until I read this post. I think many are unaware of this disorder. Its really unfortunate too, as so many are carriers (1 in 256 women)! The rate of incidence is pretty high, it is the most common kind of inherited mental impairment! This is an issue that really should be attended to.

Till then,

Jean

By: cruiser bike

cruiser bike — Mon, 15 Jun 2009 20:56:18 +0000

I am a member of biking community and I promise people will come to your blog and will learn all the abouts on Fragile X Webring.

By: Villas in Ubud

Villas in Ubud — Fri, 22 May 2009 10:06:22 +0000

Great info thanks for sharing…

By: Bali Villas

Bali Villas — Thu, 04 Dec 2008 12:45:06 +0000

wow. such a great info..

By: Sueblimely

Sueblimely — Thu, 13 Nov 2008 12:20:09 +0000

I am pleased that you found this useful. Most people have heard of Down’s Syndrome the most common cause of genetic disability yet Fragile X is the 2nd most common and so many know nothing about it. It is likely because the typical facial features of Fragile X tend not to be apparent until a child is older – longer face, more prominent jaw – and even then these features are not out of the ordinary within the general population.

Journeyer – please suggest to your cousin that she joins in the forums on the FX Aust site once I get them up and running, which will be in the next few weeks. It will be good to have a place where Australians affected by FX can get together.

rhubarb – I do not know a lot about Rett Syndrome but I am trying to develop a very comprehensive list of links on the FX site to as many Australian disability services and resources I can. If you want to contact me (via contact form on my site) we could perhaps talk about ways you could find support and information online.

game-girls last blog post..????? ??????? (Blindness) ??????? ???? ?????? ??????

By: Grand* MA

Grand* MA — Sat, 26 Jul 2008 00:50:37 +0000

Sue, much to my regret, I have been having difficulty at being online long enough to get much done, I was able to stumble the post although it took me several tries to finally “get ‘er done.”
Hopefully by this coming Sunday, the telephone repair man will find the solution I’ve been waiting on since May. Till next time, keep your fingers, toes, and eyeballs crossed that this issue get cured!

Much love to you, Dearie.

By: Lady Banana

Lady Banana — Wed, 23 Jul 2008 19:39:07 +0000

I had heard of this syndrome but can honestly say I was not fully aware of what it was - thank you for this interesting and informative post. Lady Bananas last blog post..Links for 2008-07-22 [del.icio.us]

By: Flower Types

Flower Types — Wed, 23 Jul 2008 13:06:24 +0000

Fragile X Syndrome is a good and new news for me. Thanks for sharing this information

By: dan@assertiveness courses birmingham

dan@assertiveness courses birmingham — Wed, 23 Jul 2008 09:41:53 +0000

I think it’s fantastic that blogging and the web has created the opportunity for people to make others aware of things like this. It’s wonderful to touch the lives of so many people, many of whom will arrive at posts like this when they discover their own, or their child’s condition.

Keep up the good work here, you are definitely making a difference to people’s lives. For some, like myself, who were not aware of Fragile X, our involvement in communities and schools will help to raise awareness and hopefully help others.

By: Bobby Revell@horror fiction

Bobby Revell@horror fiction — Wed, 23 Jul 2008 05:51:49 +0000

Hi Sue, thanks so much for writing this. I was fairly unfamiliar with this syndrome and I have definetly learned something here. I am happy to stumble