Comments on: Blog for Autism Awareness Month

By: Anonymous

Anonymous — Mon, 18 Aug 2008 17:16:05 +0000

Elyse Bruce is raising awareness and funds for autism with her “Countdown to Midnight” CD. It’s got awesome music on it, and best of all, the money gathered DOES NOT go to Autism Speaks, an organization considered offensive to most autistics.

Pass the word.

By: Sueblimely

Sueblimely — Sat, 29 Mar 2008 12:39:39 +0000

I think only between about 4-7% of kids with Autism have Fragile X and although most FX kids have some Autism symptoms not all are diagnosed as being Autistic.

You are right the more awareness and knowledge the better - Autism is so common and there is still a lot of misunderstanding about it in the wider community. That is obvious the way people stare at my son because of his unusual mannerisms, which of course as his mum I love because they are just part of what makes my son who he is.

By: Sueblimely

Sueblimely — Sat, 29 Mar 2008 12:31:04 +0000

Good thinking Kelley - I will join in with promoting the Australian Autism week too

By: Sueblimely

Sueblimely — Sat, 29 Mar 2008 12:29:48 +0000

There is a lot unknown but it amazes me how much has been discovered and learned in recent times. The new research is really encouraging with drug treatment going through human trials and a method of actually reversing the effects on the brain just discovered (in mice only as yet)

By: Sueblimely

Sueblimely — Sat, 29 Mar 2008 12:16:15 +0000

I am pleased that kids are being tested more for FX these days - means that the docs are more aware of it.

Although adult males with FX often have long faces this feature is often not present in young children - I think it is something that develops more over time - another result of loose connective tissue problems.

FX cannot be passed on from fathers to sons because they can only pass their y chromosome on to boys.

By: Sueblimely

Sueblimely — Sat, 29 Mar 2008 12:10:30 +0000

Thanks for letting me know about FuelMyBlog, Zubli - I had not realized that I had been featured

Good to see you commenting here too.

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Your page is now on StumbleUpon! — Fri, 28 Mar 2008 11:11:10 +0000

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By: Jayne

Jayne — Fri, 28 Mar 2008 00:23:34 +0000

Thanks for this article and link
My son was tested for Fragile X after his autism diagnosis.
I think Aussie Autism month is in May, but it can’t hurt to bring people’s attention to this condition at anytime.

Jayne’s last blog post..Trivial History March 28

By: Kelley

Kelley — Wed, 26 Mar 2008 23:26:31 +0000

Thanks for the info babe. Will have a look at the other participants but I don’t know if I am going to join in, blog wise. Probably will during the Australian Autism week.

Kelley’s last blog post..All these horror birth stories clogging up the blogosphere

By: Babyamore (Trish)

Babyamore (Trish) — Wed, 26 Mar 2008 11:15:35 +0000

There is so much unknown about neurological and genetic disorders/diseases and syndromes.The more awareness the better we all will be in coming to appreciate each others uniqueness and live in tolerance. thanks for bringing this to our attention. My Little Drummer boys Babyamore (Trish)'s last blog post..Wordless Wednesday - what do you see ?